Wednesday, November 02, 2005

IMF Bank on a Cure


Myeloma Patients: Please participate in the IMF Bank on a Cure.

I sent an email to dsmith@myeloma.org and received my kit a week later.

Note: if you live outside the US, you need to wait until you're going to be in the US to return the kit as there are problems with customs delays.

http://www.myeloma.org/main.jsp?type=article&id=1547

What Is Bank On A Cure®?

Created by the International Myeloma Foundation (IMF), Bank On A Cure is the world’s first databank of myeloma patient DNA and information. The project brings together the global myeloma community to create a truly collaborative research environment with open access to complete genetic information from more than 10,000 myeloma patients.

What Is the Goal of Bank On A Cure?

The goal of Bank On A Cure is to find effective treatment strategies and, ultimately, a cure for multiple myeloma.

How Does Bank On A Cure Work?

Bank On A Cure is a repository of DNA collected worldwide through large clinical trial groups, clinical centers, hospitals and individual patients. As the samples arrive, a series of genetic tests are performed and logged into the Bank’s database. All patient identifiers are removed to ensure the strictest code of confidentiality. Bank On A Cure technology then identifies genetic variations, known as SNPs (single nucleotide polymorphisms), in the DNA, which provide the basis for studies identifying factors related to disease onset, symptoms, morbidities, clinical response and toxicities.

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